The Subject Portal!

Allows for data entry PLUS delivery of personally relevant information, incentive points and gift card exchange, and secure communication.  Together, participants have a powerful, “me-first” reason to stay engaged (learn more and see examples here and here).

General
Responsive Design (phone, table, lap/desk-top)	Flexible Setup
	Broad design scope Flexible scheduling (e.g., daily, weekly, monthly) Control over Edit, View, Create states.  For example: Editing of 3 previous days in a daily diary Viewing only of 2 previous, editing of current day  Create survey on demand if specified symptom occurs  Extensive registration options Anonymous surveys Anonymous screening, if pass then self-registration Direct self-registration (no screening) Only staff can register participants. Staff login for participant
Configurable Portal
Full Control Over Look & Feel Completely configurable portal, add: Logo Color scheme Video, pictures, other multimedia Instructions More...
Data Entry
	Extensive form design options Variable types, examples: Date fields, text, numeric, etc. Variable Layout, examples: Designed using word processor Data validation Skip logic Automated completion status Extensible Direct access  to HTML Programmable
Personalized Reports
Incentives
	Earn and Accumulate Points Participants can earn points for... Completing forms Obtaining goals (e.g., 10% weight reduction) Completing study visits More... Participants can exchange points for gift cards
Communication
Connecting Participants and Staff  Built-in, secure conversation platform, between  Participants and research staff Research staff Secure file exchange Automatic, configurable email reminders

Overview

Engage patient in the process through an easy to use on-line portal.

• Key Features
  1. Web-based multi-media tools for:
     1. Subject data entry
     2. Delivery of reports dynamically linked to data
  2. Incentives
     1. Earn and Accumulate Points for...
        1. Completing forms
        2. Obtaining goals (e.g., HgA1c below 7)
     2. Automatic or manual point distribution
     3. Allow participants to exchange points for gift cards
  3. Personalized Information
     1. Create and deliver personally relevant information based-on the participant’s own data.
     2.  Dynamic content
        1. Videos
        2. Charts
        3. Web links
        4. Educational materials
        5. More...
  4. Completely customizable
     1. Layout, look and feel, color and text scheme
     2. Use of any web-based tools (e.g., links, pictures, video, audio files, etc.)
     3. Unlimited webpages
     4. Use any preferred navigation method (menu, pictures, buttons, etc.)
  5. Responsive Design - Dynamically accommodates different form factors such as: 
     1. Phones
     2. Tables
     3. Desktop
  6. Communication
     1. Integrated, secure communication platform between participants and staff, and between staff
     2. Automated email notification of study events
  7. Flexible design and scheduling
  8. Range of enrollment options
     1. Account created by participant
        1. Anonymous
        2. Anonymous converted to known case upon consent
     2. Account created by staff
     3. Ability to manage multiple surveys / studies simultaneously
• Examples
  1. Data entry forms with video, sounds, pictures, etc.
  2. Clinic-specific look, images, content menus and pages, etc.
  3. Reports driven by data (e.g., progress toward clinical goals, chart of prognosis, list of support groups / other services, etc.)
  4. Automated email reminders of data collection events
  5. Anonymous survey, followed by consent to participate question.  If consent given staff notified of case.
• What To Consider
  1. What proportion of targeted cohort is able to use / access a computer?
  2. What information would be helpful to patients (e.g, disease FAQs, brochures, charts, graphs, feedback on goals, prognostic chart, treatment video, educational materials etc.), and how can this information be customized to a specific patient?
  3. What information could a patient provide that would facilitate or improve clinical care?
  4. How do you want to brand your clinic / study?